The Keith B. Hayes Foundation was created to honor and memorialize Keith and to continue his spirit of giving to others rising up to the challenge of life. Keith Hayes had just transferred to a 4-year college and was only 20 years old when he suddenly passed away after enduring an undiagnosed muscular and skeletal myopathy disease with severe heart involvement. Keith had a quiet strength throughout his short life span and made a significant difference to those that knew him. Keith’s heart was enlarged, both physically and with giving support to others. We therefore, as a family felt it important to celebrate Keith’s spirit of giving, as the basis of the Keith B. Hayes Foundation. It is the Foundation’s goal to provide Grants for research of glycogen storage diseases (this year, 2025, a research grant made to the Duke University Y.T. and Alice Chen Pediatrics and Genetics and Genomics Center) and donations to organizations which assist those facing life’s challenges such as the The Wheel Chair Foundation, Jawonio, the Children’s Cardiomyopathy Foundation and Friends of Yad Sarah.

To visit The Keith B. Hayes website, please click here.